Thursday, May 7, 2009

bored

I have been on personal/medical leave from work since the 28th of April. I was at work that night and as I was finishing up my shift while I was talking to a fellow co-worker. The next thing I knew I had one of those "dizzy spell" feelings come over me, I tried to fight it off as best as I could then next thing I knew everything was going dark. All the light was was disappearing from my sight, from the outside in. I felt more dizzy than I had ever felt since these feeling first began happening. the next thing I know I can hear "Billy" asking me if I was all right and I could remember seeing my hands shaking in front of me. I was trying to keep myself from falling over and I was really tired, hot and extremely thirsty. I opened my eyes to find myself on the bakery's prep table and Billy was calling for a manager to come over immediately. I felt like I was in a trance as he was leading me to a chair so I could sit down. I still felt so light headed as the manager came over to ask me if I was all right. I explained to him that I had MS and what medication I was on. I was feeling so "wiped out", I didn't know what was going on, I couldn't hardly talk, all i felt like was lying down. We walked back to the lockers and I told him I was going to call my neurologist EARLY in the morning to see if she wanted me to come in so we could see what was going on. I talked to one of her assistants on the phone and she said the DR. wanted me to come in as soon as I could. She did some more tests and after checking me over i was told that I had had a partial seizure. She told me to stop taking my "Rebif" immediately. Rebif is the injected medication that I was taking for my MS. in a small % of people, Rebif was known to cause seizures. And I guess I turned out to be in that %. She gave me another RX for an anti-convulsant-in addition to the one I was all ready taking. Plus another RX to give me more energy in the morning. She told me she wanted me to start taking "Copaxin" for my MS. (another injectable med., this one is everyday verses the 3 times a week with Rebif) I was told that I'd have to wait for the Rebif to get out of my system and since all my meds have to be approved by my insurance co.--it was going to take a while before I would get it. Lots of red tape-I thought health insurance companys were supposed to help people.
All of this happened the week before my sister's wedding. It was so scary not knowing when these spells were going to happen next. I wasn't allowed to drive. (but I did that anyway-had to go to work, had to earn a paycheck, had bills to pay) I was so hoping I wouldn't have another big one the day of her wedding! There was no way I was going to miss that! My Dr. told me no driving whatsoever, and if I had another big one like before I would be classified as an "epileptic".
My follow up with her was on the 6th. And she extended my leave of absence, because I was still having the dizzy spells. She told me that she had sent "Medfusion" my RX for the copaxin, and I assume "medfusion" will call me to set up shipment or I might have to make some phone calls myself if I don't hear anything from anybody.
My sisters wedding was so beautiful and romantic. An outdoor wedding like she wanted. The rain held off, and we had the reception inside the Paris Landing State Park Hotel. We had lots of family and friends there. It was a wonderful day. I have lots of pictures on my digital camera-I want to save them to my "memory card" so I can make copies and send them out, and I want to post some on my blog here and on Facebook when I have time. She and Jason went to Florida for their honeymoon. She sent me pictures from her cell phone. It sounds like she and Jason are having the time of their lives. I'm so happy for the both of them.